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The caregiver's path to compassionate decision making : making choices for those
Kind, Viki
Adult Nonfiction RA645.3 .K557 2010

Comments  Summary  Contents  Author Notes

ContentsPage
Introductionp. 1
Chapter 1 - Starting Down the Decision Making Pathp. 7
The Day My Dad Was Shot in the Dementia Unit
What Should You Do First?
Getting Your Loved One Professionally Evaluated
Determining Capacity
Core Question #1 - Does the individual have the ability to make his or her own decisions? Does he or she have decisional capacity?
How Long Will This Inability to Think and Communicate Last?
Core Question #2 - If the person is not able to speak for him- or herself, how long will it last?
Fluctuating Capacity
Learning the Tools
Chapter 2 - The Decision Making Frameworkp. 21
Using the Right Framework to Build a Good Decision
Decision Making Framework
Core Question #3 - Was the individual able to speak for him- or herself in the past?
Autonomy
Substituted Judgment
Using the Platinum Rule
Questions to Use with Substituted Judgment
Making the Decision
Who Should Make the Decisions?
Core Question #4 - Who should make the decisions when this person can't?
When the Person Making the Decisions Is Getting It Wrong
Chapter 3 - The Best Interest Standardp. 41
Who Will Decide?
How to Use the Best Interest Standard
Which Patients Will Need the Best Interest Standard?
Who Is the Unbefriended or Unrepresented Patient?
Do You Know Which Framework to Use?
Chapter 4 - The Shared Decision Making Modelp. 49
How Old Is Your Loved One Mentally?
Core Question #5 - About how old is the person developmentally? What is his or her mental age?
The Shared Decision Making Model
Chapter 5 - The Sliding Scale for Decision Makingp. 55
The Sliding Scale for Decision Making
The Danger of Using This Tool Incorrectly
Chapter 6 - The Assent Toolp. 61
How the Assent Tool Works
Should Your Loved One Participate in the Decision Making Process, and If So, How Much?
The Assent Tool
Obtaining the Persons Assent or Dissent
The Problem with Assent
Does No Mean No?
Improving Communication When Asking for Assent
Be Careful When You Try This with Your Loved One
Fighting for Control
Babying Your Loved One
When the Person's Developmental Age Is Fourteen to Seventeen Years Old
Chapter 7 - How These Tools Work Togetherp. 77
Testing Our New Knowledge
5 Core Questions Flowchart
Using the Tools in Real Life
Chapter 8 - Applying Your New Skills to Real-Life Decisionsp. 89
Action Questions
Decision: Starting a New Medication
Decision: Taking the Car Keys Away
When and How to Take the Car Keys Away
Decision: Moving to a Care Facility or Group Home
Decision: A Life-or-Death Medical Decision
Chapter 9 - When Our Hearts Get in the Wayp. 101
Choosing the Least Worst Option
The Promises We Cant Keep
Reconnecting with Your Loved One-The Pajama Story
Are You Experiencing "Care-grieving"?
Caregiver Burnout-Getting the Support You Need
Protecting the Caregiver
Seeing It from Your Loved One's Perspective
Chapter 10 - Making the Medical Decisionsp. 115
Balancing the Benefits and the Risks
Asking Good Medical Questions
Medical Questions
When the Plan Doesn't Work or Can't Work
Chapter 11 - Other Questions to Consider When Making Medical Decisionsp. 127
Financial Questions
Religious or Spiritual Questions
Cultural Questions
Chapter 12 - Quality of Life and Personal Valuesp. 137
Medical Goals versus Quality-of-Life Goals
Quality-of-Life Questions
How Quality-of-Life Goals Can Affect Decisions
Deciding What Makes a Person's Life Worth Living
The End of Life
Chapter 13 - Making the Most Difficult Decisions at the End of Lifep. 153
What Does Your Loved One Deserve?
Making Decisions about CPR and DNR
If I Say, "No CPR," Does That Mean Everything Stops?
When Your Loved One Gets CPR Against Her Will
When Your Loved One Said to Do Everything, but Everything Isn't Possible
What Is the Difference Between Palliative Care, Comfort Care and Hospice Care?
How Do I Get My Loved One on Hospice?
When the Doctor Won't Put Your Loved One on Hospice
Hospice Information for Doctors
Communicating with the Dying
The Journey Through the Early Days of Dying
The Journey Through the Final Days of Dying
Did I Matter?
Discrimination at the End of Life for the Mentally Disabled
Chapter 14 - The Big Picturep. 187
The Day My Mom Died
Author's Notep. 191
Appendix 1 - 5 Core Questions Flowchartp. 193
Appendix 2 - An Insider's Guide to Filling Out Your Advance Directivep. 197
Appendix 3 - Action Questionsp. 213
Appendix 4 - "Kindness Reminders"p. 215
Glossaryp. 217
Acknowledgmentsp. 223
Referencesp. 225
Indexp. 227
About the Authorp. 235


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